Dear Minister Harris, please don't put a price on our lives.

Tell the Minister for Health to support the fight for Orkambi


Orkambi is a breakthrough drug that could change the lives of 600 Cystic Fibrosis sufferers in Ireland. It’s the first drug to treat the underlying cause of the most common form of CF – Double Delta F508.

For people with Double Delta F508, Orkambi could be a life-changer. But for the Irish Government, it’s just another expense.

In clinical trials, Orkambi has been shown to increase lung function, improve weight gain and reduce hospitalisations and exacerbations by up to 40%. Less time spent in hospital for CF sufferers could translate into real healthcare savings in the long term.

It sounds impossible to say no to, but funding for Orkambi has been refused in Ireland. That’s despite us having the highest incidence of CF in the world.

It’s time to take action and convince the Minister for Health that the Government simply cannot put a price on people’s lives.

The reality is we’re not just fighting for Orkambi; we’re fighting for our lives. Please fight with us and help us get heard. You can support our campaign by emailing or tweeting Minister Harris and by sharing our videos on social media.

Learn more

Learn more about the people behind the price tag

What you can do to help

Please share our videos and help get our voices heard.

Please also tell Minister Harris that you want the Government to pay for Orkambi, a drug that could give 600 Cystic Fibrosis sufferers their lives back.